This is our story; life with my PDA son and how we learn and adapt to his needs. I’m also passionate about sharing our experience about a low-demand lifestyle, so other parents/carers can work towards improving family life for all.
This is an article I wrote for Carers UK and Special Needs Jungle about parent carer identity, what it means to me and how I feel about our place in society. If it touches you I’d love to hear your thoughts. Although I, like many of you, seem to spend every waking moment thinking about…
Well, we moved house. It happened, finally, after about sixteen months. Like everything in our neurodivergent family, it’s been a bit like driving a formula one car, without any training, on unfamiliar roads. And you keep running out of petrol. And the steering wheel doesn’t work… JJ coped really well in the run-up to the…
I’m really aware that recently my Facebook stories have been filled with lots of pictures of us out of the house. After two years of being practically housebound due to JJ’s anxiety, this has been life-changing for our family and I really want to share this happiness. I want to give hope to other families…
It’s no secret within our community of parent carers of PDAers that the question of school is a really gnarly and difficult one. Amongst my friends, there seems to be a pattern of ‘we’re fine in primary school at the moment!’ …which then inevitably leads on to ‘ok, we need an EHCP and reasonable adjustments…
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A Boy Less Ordinary