This is our story; life with my PDA son and how we learn and adapt to his needs. I’m also passionate about sharing our experience about a low-demand lifestyle, so other parents/carers can work towards improving family life for all.
I’m getting to the point where, sometimes, I get asked for my advice by parents of PDAers. I still find this strange and think to myself ‘why are they asking me?!’ If you could have seen me and my family at the start of lockdown, you may not recognise us as the same people. It’sContinue reading “Blog#20: One Piece of Advice?”
Dear families and friends of parents with PDAers, Firstly, let me just tell you this. From the bottom of my heart. We GET it. It’s really hard to understand our lives. We see the disbelief in your eyes, the way you wince when you witness situations that seem entirely out of our parental control. YouContinue reading “Blog#19: Dear families and friends”
I’ve been mulling this one over for quite some time. Meltdowns, and everything that comes with them, are a highly emotive subject for families with PDAers. Often on online forums, parents post about how they are at their wits end with immensely challenging behaviours, and are sometimes called out on their feelings by neurodivergent individualsContinue reading “Blog#18: Meltdowns – two sides to every story”
This year, I’ve been struggling with my own ‘elephant in the room’. My elephant is that we have no official PDA diagnosis for JJ. Ever since our PDA lightbulb moment in the spring of 2019, I’ve devoted a huge part of my life to discovering everything I can about this little-known profile of the autismContinue reading “Blog#17: The elephant in the room”
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